Webinar
What Do Patients Experience Between Visits, and Why Does It Matter?
Many therapies are approved on surrogate endpoints that often say little about which therapy is best for a patient's needs. In nephrology, IgAN went from zero to six approved therapies in the last 5 years, each first reaching market on a proteinuria endpoint. But does this measure what actually matters to the people living with the disease?
In this webinar, Folia researchers alongside clinician and industry partners will explore a field that has launched several therapies since 2021, what patient's between-visit, home-reported outcomes added to research, and why teams working in any condition should start collecting them.
You'll learn:
- How structured patient evidence turns anecdotal observations into usable data.
- How patient insights can reveal treatment impacts never captured as trial endpoints.
- Why this matters more, not less, once treatments are clinically effective and differentiation shifts to quality of life.
- How this evidence supports clinicians, clinical development, HEOR, and commercial teams.